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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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    • #22855
      Alyssa Silva
      Keymaster

      A friend of mine is an occupational therapist and has been sharing activities on her Facebook profile to do with your little ones while we’re all homebound. I especially loved this activity I’m about to share and asked her permission to do so!

      What you’ll need: white rice, distilled white vinegar, and some food coloring

      For every cup of rice, add 1/2 tsp of white vinegar and a few drops of food coloring in a bag and then shake. Then… let your child PLAY!

      There are so many great motor skills at work here. Scooping, opening/closing the ziplock bag, and using your hands to shake/mix up the rice.

      If your child is unable to receive therapy during this time, this could be a great alternative! Are there any innovative activities you’ve come up with that your child loves?

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