• Adults ​With​ ​SMA

  Happy Rare Disease Day!

  Posted by alyssa-silva on February 28, 2022 at 5:25 pm

  Hey all. Happy Rare Disease Day! I hope you find something about your rare disease that’s worth celebrating today (and every day.) Personally, I’m celebrating the resiliency SMA has taught me to have after coming home this weekend from an almost 4-week hospital stay. What we may lack in physical strength we make up for in other ways.

  In light of today’s celebration, I thought I’d share some RDD columns from our sister sites in case you’re looking for something to read tonight. Here are just a few of my favorites.

  Richard Poulin III, AADC News Today: On Rare Disease Day, Remember Our Strength
  Lara Govendo, Cystic Fibrosis News Today: I’m Grateful for the Rare Gift of Empathy
  Dagmar, ALS News Today: What Being Rare Means to Me
  Samuel Kirton, Pulmonary Fibrosis News: Ensuring No One Is Underserved Along Roads Less Traveled

  alyssa-silva replied 2 years, 7 months ago 1 Member · 0 Replies

  • Living with SMA
  • Rare disease day
  • resiliency
• 0 Replies

Log In to Reply