Hey all. Happy Rare Disease Day! I hope you find something about your rare disease that’s worth celebrating today (and every day.) Personally, I’m celebrating the resiliency SMA has taught me to have after coming home this weekend from an almost 4-week hospital stay. What we may lack in physical strength we make up for in other ways.
In light of today’s celebration, I thought I’d share some RDD columns from our sister sites in case you’re looking for something to read tonight. Here are just a few of my favorites.
Richard Poulin III, AADC News Today: On Rare Disease Day, Remember Our Strength
Lara Govendo, Cystic Fibrosis News Today: I’m Grateful for the Rare Gift of Empathy
Dagmar, ALS News Today: What Being Rare Means to Me
Samuel Kirton, Pulmonary Fibrosis News: Ensuring No One Is Underserved Along Roads Less Traveled