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This topic has 3 replies, 3 voices, and was last updated 1 year, 1 month ago by Ryan Berhar.

  • Author
    • #19180
      Kevin Schaefer

      Howdy everyone! Hope you all had a great weekend.

      So I hadn’t even thought about this until the other day when I was talking with my neurologist at the MDA clinic, but I realized that my head and neck control has improved significantly in recent years. My head used to tilt to the side quite often, especially when I was in a car. I also have a big head, which made these scenarios pretty comedic. “Hey Mom, my head’s falling over again.”

      However, this hasn’t happened in a while, and I’m betting it’s an effect of Spinraza. It was a cool realization, and I thought I’d share it here.

      Has anyone else experienced this?

    • #19188
      Adnan Hafizovic

      I had similar problems, but with exercise and massage, my neck is in good condition. I think our neck muscles are in a better condition than others. But Kevin maybe Spinraza gives some strength in your neck.

      • #19189
        Kevin Schaefer

        That’s good to hear. Yeah I’m glad mine is more stable now. It’s one less thing to worry about. Hope you’re doing well!

    • #19195
      Ryan Berhar

      I basically have zero head control. I’m sure it decreased over time, but I never had much to start with, either.

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