• Head and Neck Control

    Posted by kevin-schaefer on June 3, 2019 at 11:00 am

    Howdy everyone! Hope you all had a great weekend.

    So I hadn’t even thought about this until the other day when I was talking with my neurologist at the MDA clinic, but I realized that my head and neck control has improved significantly in recent years. My head used to tilt to the side quite often, especially when I was in a car. I also have a big head, which made these scenarios pretty comedic. “Hey Mom, my head’s falling over again.”

    However, this hasn’t happened in a while, and I’m betting it’s an effect of Spinraza. It was a cool realization, and I thought I’d share it here.

    Has anyone else experienced this?

    ryan-berhar replied 4 years, 11 months ago 3 Members · 3 Replies
  • 3 Replies
  • adnan-hafizovic

    June 3, 2019 at 11:49 am

    I had similar problems, but with exercise and massage, my neck is in good condition. I think our neck muscles are in a better condition than others. But Kevin maybe Spinraza gives some strength in your neck.

    • kevin-schaefer

      June 3, 2019 at 12:03 pm

      That’s good to hear. Yeah I’m glad mine is more stable now. It’s one less thing to worry about. Hope you’re doing well!

  • ryan-berhar

    June 3, 2019 at 6:17 pm

    I basically have zero head control. I’m sure it decreased over time, but I never had much to start with, either.

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