-
Hi!
Hello, my name is Crystal. I have SMA type 2 although I am very lucky. I’m 19 years old and I can still hold my head up and move my arms a little bit. I don’t use a Robotic arm or anything (though the nerd side of me wishes I did). I’ve been reading the blogs here on SMA News Today for awhile and I love reading them cuz they make me feel less crazy. But I never bothered signing up for the forums until recently. Typing takes a lot of energy and I’d rather just watch YouTube or Netflix or read. But here lately I’ve been feeling really down and out and confused cuz of SMA and I’m tired of feeling so alone, so here I am. You know how when we’re kids, people always say “You can be anything you wanna be.”? Is that even true though? I don’t think so. If that was the case, I’d be working my butt off to become an FBI agent right now… Instead, I sit with my home health aide and watch Criminal Minds. I have this strong need to help people so I started a YouTube channel where I talk about SMA and life and give advice and basically try to help other people survive this life, but that doesn’t feel like enough. SMA prevents me from doing what I want and here lately that’s really been bugging me. Also, my scoliosis has made an even worse turn and it hurts when I lay down which makes it frustrating trying to get good sleep. Reading the blogs on here really helps me so I figured I’d reach out to the people who understands me…
Log in to reply.