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  • Hi Everyone!

    Posted by rachel-markley on July 9, 2019 at 8:45 am

    Hi all!

    My name is Rachel Markley, I am 28, a weak type II, and live in League City, TX between Houston and Galveston. I am a full-time research coordinator in the Center for Neuroregeneration at Houston Methodist Hospital. I will receive my 4th loading dose of Spinraza next Wednesday!

    Happy to answer questions or just chat!

    krystal replied 4 years, 9 months ago 5 Members · 4 Replies
  • 4 Replies
  • tracy-odell

    Member
    July 9, 2019 at 9:11 am

    Welcome, Rachel! You should enjoy being part of the forums. I know I do!

    From what I have heard, the Spinraza injections make a difference.

    Tracy Odell from Toronto, Canada, SMA II and 60+

  • kevin-schaefer

    Member
    July 9, 2019 at 2:06 pm

    Happy to have you here! And good luck on your next injection!

  • ryan-berhar

    Member
    July 9, 2019 at 5:11 pm

    Hey Rachel, welcome! I’m Ryan, one of the forum moderators. Let me know if you have any questions. Good luck with your fourth loading dose!

  • krystal

    Member
    July 10, 2019 at 7:34 am

    Hello Rachel,

    It’s nice to virtually meet you. My daughter is probably one of the few youngest members on this site. She is 19 months old with Type 2. I am honestly here to build relationships with the older SMA population so I can prepare my daughter for the future and learn more about SMA and how it affects daily living. We live in the Dallas suburbs, and I have family in Houston. Exciting to see that your last loading dose will be next week!

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