Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
My name is Rachel Markley, I am 28, a weak type II, and live in League City, TX between Houston and Galveston. I am a full-time research coordinator in the Center for Neuroregeneration at Houston Methodist Hospital. I will receive my 4th loading dose of Spinraza next Wednesday!
It’s nice to virtually meet you. My daughter is probably one of the few youngest members on this site. She is 19 months old with Type 2. I am honestly here to build relationships with the older SMA population so I can prepare my daughter for the future and learn more about SMA and how it affects daily living. We live in the Dallas suburbs, and I have family in Houston. Exciting to see that your last loading dose will be next week!
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