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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.


  • This topic has 4 replies, 4 voices, and was last updated 1 month ago by Brianna Albers.

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      • #21610
        Brianna Albers
        Keymaster

        Happy December! I’m two days away from a “Star Wars” marathon that I’ve been planning for months and have been dreaming about for years. At least 10 people are coming, which doesn’t sound like a lot, but it’ll be the biggest party I’ve ever hosted. I’m excited, but also nervous. I’m honestly relieved that we’ll be watching movies the entire day.

        If it were just my best friends, I would be fine, but there are several people coming that I’ve never even met. It’ll be interesting for sure. I have another party on the weekend of the 13th, but that’s just my annual holiday gathering with my friends, so I’m not as worried about that. It’ll just be a chill hangout.

        Do y’all have any tips for hosting with SMA? I’ll take anything! 

      • #21619
        DeAnn R
        Keymaster

        Sounds like fun! No advice, just try not to stress about it.

      • #21623
        Alyssa Silva
        Keymaster

        Always provide pizza, and your guests will be happy. 🙂

        But, like DeAnn said, don’t stress! When I host parties I ask people to bring either an appetizer or dessert. Then I go shopping for the main dishes (burgers, dogs, pizza, etc.), drinks, and cutlery. This obviously won’t apply to your movie night but I always make a playlist on Spotify to have playing in the background too.

        Have a great time this weekend!

      • #21631
        Halsey Blocher
        Participant

        That sounds really fun! I’ve never hosted a movie marathon, so can’t really think of any advice. I hope you have a great time! You can’t really go wrong with Star Wars.

      • #21705
        Brianna Albers
        Keymaster

        Thanks, all! It went really well. You’re right, Alyssa – you can’t go wrong with pizza!

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