• Sponsored Post

    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 4 replies, 5 voices, and was last updated 1 day, 8 hours ago by Ryan Berhar.

    • Author
      • #21988
        Rachel Markley

        I’m in the appeal process for my JACO and have been asked to write my own appeal letter. Does anyone have one I can look over?

      • #21989
        DeAnn R

        I know both Kevin and Ryan have a JACO, but not sure they had to go through the appeal process.  Are you a member of this group https://www.facebook.com/groups/jacousers/   They might have some good info for you.  My suggestion is to start with a list of everything you imagine using it for.  Anything that increases independence or improves safety is usually what they’re looking for.  Good luck!

      • #21995
        Kevin Schaefer

        I never went through insurance, but I’ve heard using words like “prosthetic arm” are really effective, since that’s essentially the purpose of JACO. DM me on Facebook. I know an SMA parent who went through this process for her daughter.

      • #22012
        Halsey Blocher

        Like DeAnn said, definitely make a list of what you will use it for. Make it as detailed as possible. Include anything you can think of, why you need the arm to do it, and why you need to that task at all. I also recommend referencing independence. Explain how the arm will provide you with that, and, as crazy as this might sound, why that independence is necessary. Also try to get a physician to write a letter that talks about all of this in addition to your own letter. I don’t have JAKO arm, but this is what I’ve done to appeal other pieces of equipment.

      • #22013
        Ryan Berhar

        Hey Rachel, Lauren Bakken is Kinova’s full time family advocate and she works on appeals, including help with drafting the appeal letter. Contact her at [email protected]. She should be able to help.

    Viewing 4 reply threads
    • You must be logged in to reply to this topic.

    ©2020 KLEO Template a premium and multipurpose theme from Seventh Queen


    We're not around right now. But you can send us an email and we'll get back to you, asap.


    Log in with your credentials


    Forgot your details?


    Create Account

    Copyright © 2017-2020 All rights reserved.