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Time Is Motor Neurons

A father’s perspective: Our journey to finding a treatment

When Quinn, our soon-to-be-born daughter, didn’t make as much movement in the womb as our other 3 children, my wife, Annie, and I thought we had the “chillest” baby in the world. We joked that she was saving up all her energy for when she entered this world kicking and screaming. Quinn was born in August 2018, and she was the most beautiful little girl. Over the first few months, nothing seemed out of the ordinary. In fact, she appeared healthy and had strong upper body strength. But by the time Quinn’s 9-month check-up came around in June, her physical condition started to change.


This topic has 2 replies, 3 voices, and was last updated 7 months, 2 weeks ago by Halsey Blocher.

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    • #21002
      DeAnn R
      Keymaster

      The PCA I have for my most difficult shift to fill has been with me for almost a year. Lately she’s been calling out a lot. Actually she’s always called out often, but recently more so. Mainly her excuse is a sick kid. She doesn’t give me any indication that she’s unhappy working here, but I can’t fathom her kid is actually sick that often. This week it happened to be over MEA. Coincidence? I really like working with her, so I want to give her the benefit of the doubt. Furthermore I don’t want to go on a new PCA search if I don’t have to. If she doesn’t want to work here I don’t want to force her to either. It’s just getting difficult to cover her so much. I’m just not sure how to approach the subject with her. Thoughts or ideas?

    • #21015
      Ryan Berhar
      Participant

      I would probably just tell her that you really appreciate her service and want to keep her, but that going forward you require a bit more consistency. I don’t see anything wrong with that.

    • #21016
      Halsey Blocher
      Participant

      I agree with Ryan. You might just need to sit down with her and kindly explain your concerns. I’ve had to do this occasionally with a few of my nurses and they’re usually very receptive. If you think it would go better, you could also share your concerns with the agency that she works for and ask them to speak to her with you or on your behalf.

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