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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 3 replies, 3 voices, and was last updated 1 month, 1 week ago by Patrick Lenihan.

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    • #24106
      DeAnn R
      Keymaster

      My favorite song of the summer is Better Days by One Republic.  Even though I could probably play it all day on repeat I’m looking to switch it up and would like Spotify playlist suggestions.  I took advantage of their 3 free months of commercial free Premium, so that should carry me through the summer. I’m still loving my favorite summer find from last year (my bone conduction headphones) and want to make use of them. Do you have a favorite playlist? Favorite podcast?

    • #24134
      Alyssa Silva
      Keymaster

      Welcome to the wonderful world of Spotify! I have 5 public playlists (1 is Christmas music) that I’ll share with you down below.

      https://open.spotify.com/user/alyssasilva24?si=vZUfmw2TT5utw7dVptZG9g

      What type of music/podcasts do you like to listen to? I follow a wide variety of other people’s playlists and could probably recommend something!

    • #24140
      DeAnn R
      Keymaster

      Christmas in July! I love it. I’m pretty much open to any suggestions. So far I haven’t dabbled much into podcasts, so not sure what I’d like, but willing to give them a try.

    • #24141
      Patrick Lenihan
      Participant

      Lately I have been really enjoying a science podcast called Ologies with Alie Ward. Another science podcast I like is Quirks and Quarks. I love The Moth which is a story telling podcast. Ouch the cabin fever podcast is a really good disability issues podcast.  The Splendid Table is about food and cooking. WTF With Marc Maron is a great interview show in which Marc interviews actors, comics, writers, musicians and other artistic people. Dolly Parton’s America is an awesome nine part podcast about Dolly Parton.  American Masters has stories about iconic and influential American artists and personalities. If you like mysteries I highly recommend S-Town. Car Talk is a podcast where they play old episodes of the NPR radio show Car Talk. The banter and bickering between the brothers who hosted the show is hilarious. It is a really fun show even for those who don’t care about cars. My Dad Wrote a Porno is a hilarious podcast in which the host’s father wrote a series of really bad cheesy erotica novels and the host and his friends read the books out loud and mock the books in Mystery Science Theater fashion as they read the passages  from the books. Other podcasts that I really enjoy are Snap Judgement, The Ted Radio Hour (a longer audio version of Ted Talks) and RadioLab.

      I highly recommend Duluth musician and disability rights advocate Gaelynn Lea. She won NPR’s Tiny Desk Concert contest a few years ago and has done a Ted Talk. Her music is amazing.

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