SMA News Forums Forums Life Advice and Transitions Medicaid & Evrysdi?

  • Medicaid & Evrysdi?

    Posted by susana-m on August 29, 2024 at 6:28 pm

    A few years ago I started the process of getting Medicaid. As luck would have it, I was approved for Evrysdi at the same time. It was made very clear to me that Accredo did not deal with Medicaid so I had a decision: try the new meds or get funded PCAs.

    So here I am, 4 years in and It’s clear that I am going to need to be on Medicaid sooner or later. There are less hoops when it comes to getting PT, more long term medical needs are covered and getting help with home care is becoming more important.

    How have you guys navigated this? How do you get the medical care you need without sacrificing other support that facilitates quality of life?

    deann-r replied 9 months, 3 weeks ago 3 Members · 2 Replies
  • 2 Replies
  • micaela-macdougall

    Member
    August 29, 2024 at 6:58 pm

    Is this particular to your state? I’m in Maryland, and I had no problems getting Evrysdi covered by Medicaid.

    You’ve probably also looked at this: https://www.evrysdi.com/financial-support/assistance-options.html

  • deann-r

    Member
    August 30, 2024 at 9:32 am

    I get Evrysdi on Medicaid 🤷‍♀️ When you seek Evrysdi you can acquire a PAL (Partnership and Access Liaison) who can help navigate all that mumbo jumbo. I never found them helpful but that’s not saying they can’t be for someone else.

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