• Sponsored Post

    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 3 replies, has 3 voices, and was last updated by  Ryan Berhar 1 week, 6 days ago.

    • Author
      Posts
    • #20862
       Kevin Schaefer 
      Keymaster

      Hey everyone! Hope you all had a great weekend.

      For today’s Motivation Monday post, I want to talk about eating healthier. In all honesty, this is something I struggle with. I’m a hard worker, I love to read, and I have a good social life. Yet, the aspect of my health that I struggle with the most is eating well. I eat out too much, and I consume a lot of junk food.

      Right now, I’m trying to take small steps in this area. Instead of chips and cookies, I’m making celery sticks with peanut butter one of my primary snacks. Then when I’m out, I’m ordering more grilled foods instead of fried.

      Do you have any tips or strategies for eating healthy?

    • #20882
       DeAnn R 
      Keymaster

      Eating healthy is tough. I’m certainly on the “chunky monkey” side of SMA. Spinraza has seemingly increased my appetite (in my opinion.) Working on portion control could help. Not easy, but at least then you can still enjoy the foods you like, just not as much of it. The mentality that you have to clean your plate isn’t necessarily true. I always felt wasteful not eating everything, but I’m learning it’s not a crime. I’m also trying not to do impulse purchases of food that just looks good.

      • This reply was modified 1 week, 6 days ago by  DeAnn R.
      • #20888
         Kevin Schaefer 
        Keymaster

        I know what you mean. Aside from when I was younger and when I got sick a lot in elementary school, I’ve also been on the “chunky-monkey” side for most of my teenage and young adult years. It’s tough, but you have some good tips here. I’m also a notorious stress eater, so it helps when I’m not stressed haha. My weekly water therapy sessions help a lot in this area.

    • #20901
       Ryan Berhar 
      Keymaster

      I struggle to eat physically, and I also have a small appetite, so it’s not really an issue for me. I don’t eat much by mouth. Most of my nutrition is from a feeding tube. I guess I don’t eat the healthiest food in the world, but I don’t eat enough for it to make much difference. I don’t like that eating is a struggle, but I guess in a way it’s a good thing, as I don’t have to worry about diet

      • This reply was modified 1 week, 6 days ago by  Ryan Berhar.

    You must be logged in to reply to this topic.

    ©2019 KLEO Template a premium and multipurpose theme from Seventh Queen

    CONTACT US

    We're not around right now. But you can send us an email and we'll get back to you, asap.

    Sending
    or

    Log in with your credentials

    or    

    Forgot your details?

    or

    Create Account

    Copyright © 2017-2019 All rights reserved.