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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 5 replies, 4 voices, and was last updated 8 months ago by Kevin Schaefer.

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    • #21666
      Kevin Schaefer
      Keymaster

      Hey everyone! Hope you’re all having a great week so far.

      Check out my latest column here. Everyone who knows me knows that I’m a lifelong movie buff. For me though, movies do a lot more than just entertain. They inspire me, and can even teach me lessons about living with SMA. Even if they’re not explicitly about disability, I can still glean lessons from them.

      Hope you all enjoy this one! It was fun to write.

      Do you have any favorite movies or stories that inspire you? 

    • #21677
      DeAnn R
      Keymaster

      I love the parallels you draw.  Planning on going to at least one show over the holidays.  Not sure I can get life lessons from Jumanji, but I guess we’ll find out.

    • #21684
      Halsey Blocher
      Participant

      I haven’t heard of that Netflix series! Going to have to add it to my list. There’s also one called The Toys That Made Us. I’m guessing the one you’re talking about was inspired by it. You’d probably like that one as well.

    • #21688
      Adnan Hafizovic
      Participant

      Kevin I watched these films before, I would especially like to point out Shaun of the Dead, I love Simon Pegg and that English humor. I am left with and will remain in my memory, Terminator 2: Judgment day. The movie is really a classic and I love Schwazenegger. It has this connection between me and Terminator 2, the day after I watched it, a war broke out in my city ,I think it was first May 1992.

    • #21700
      Kevin Schaefer
      Keymaster

      Lol, you never know!

    • #21701
      Kevin Schaefer
      Keymaster

      Halsey, that one’s great too! Yeah, I think the same people worked on both.

      Adnan, great pick! I enjoyed the new Terminator as well.

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