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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 0 replies, has 1 voice, and was last updated by  Michael Morale 1 week ago.

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       Michael Morale 
      Keymaster

      Weekly Journal 8/5/19 through 8/11/19
       – While I was hoping for an easy week, it ended up being full of activity and not much excitement. I did take a day of vacation on Friday. Thursday was my birthday, and I wanted to relax a bit. Trying to cram five days worth of work in the four days presented challenges. Still, I refused to let these challenges beat me. Suffice it to say that I won the battle, but it was a war that I don’t want to face for quite some time.
       
      When I went for my workout on Tuesday, Emily and Vikki transferred to the therapy table, and we worked on all my balance, range of motion, and flexibility exercises. I used to be have reservations about transferring, but Emily and Vikki have really mastered this process.
      All of my exercises went well, and other than a few sore muscles and some fatigue, everything went as planned. For some reason, I was a little bit tired on Tuesday during my workout. My sleeping pattern is good, and my energy level had been fine before then, but I just felt a little bit weak and lethargic. When I went home on Tuesday, I went to bed early.
      I was still a little bit weak Wednesday through Friday, but each day got just a little bit better. By Saturday, the only thing that was bothering me was my allergies. While I felt strong and my energy level was high, these allergies made my nose run and my eyes water relentlessly. My legs may not run, my nose would’ve beaten anyone in the 100-yard dash.
      During my workout with Emily, we finished taking pictures for her next SMA News Today HCP article. Since I was diagnosed with severe muscle and nerve damage in my right hip, we’ve been working on these muscles each week. Emily’s article addresses these issues. I’ll post a link to the article once it’s published.
       
      In this week’s video, I answer a question that quite a few of you have asked me in the past. The question revolves around my reasons why I chose not to be an Ambassador for Biogen. My reasons for not becoming an Ambassador were ones that I had to seriously consider, and I explain them here. Click HERE to view my video.
       
      I’ve updated the flash briefings that I do for BioNews Services. Click HERE to go to the flash briefings.
       
      I hope that all of you had a fantastic week. Do something for yourself this upcoming week that will make you a better person. God bless you, and I’ll see you in a couple weeks.

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