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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 2 replies, 3 voices, and was last updated 1 year, 1 month ago by Adnan Hafizovic.

  • Author
    • #19665
      Luis and Jennifer

      Hey everyone. We are Luis (27) type 2 SMA and Jennifer (34) We live in Hickory, NC. We have been together around 4 years. We hope to get to know more in the community and become more involved. <3

    • #19666
      DeAnn R

      Welcome! Glad to have you here. Feel free to chime in on any topics or create ones of your own. Hope you’ll find we have a great community.

    • #19667
      Adnan Hafizovic

      Luis just write about your life with Jennifer ,you are good example for us.

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