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    Celebrating “Inchstones” in SMA

    A mother’s perspective: How our family measures progress since treatment

    You couldn’t picture a happier or more beautiful little boy than the one who came into our lives on January 4, 2019. Little did we know, this bundle of joy we named Slade was just starting a journey that was going to change our family’s life.

    About 2 weeks after Slade was born we started to notice that he appeared to be a bit floppy. Our pediatrician chalked it up to him being a calm baby and told us he’d eventually grow out of it. With my husband being a chiropractor and my background in early childhood development, we knew something was wrong–we could just feel it.


  • This topic has 0 replies, 1 voice, and was last updated 1 month ago by Crystal.

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      • #22114
        Crystal
        Participant

        Hey y’all! I just uploaded a new video on YouTube. It’s a short one where I talk about adapting to life with SMA. Here it is if you want to check it out: https://youtu.be/VrHDIXwpEao

        • This topic was modified 1 month ago by Crystal.
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