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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 1 voice, and was last updated 2 months, 1 week ago by DeAnn R.

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    • #23716

      Happy Friday everyone! Hope you’re all doing well.

      Check out Ryan’s latest video here. In this episode of Ryan’s Robotics, Ryan demonstrates how he uses his JACO robotic arm to open doors in his house. This is another example of how this device increases Ryan’s independence. Hope you all enjoy!

      Do you have any questions about the JACO arm or other assistive technologies?

      Visit http://www.smanewstoday.com to learn more about spinal muscular atrophy.

       

       

    • #23731
      DeAnn R
      Keymaster

      Awesome!  I’m trying one out in July!

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