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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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    • #23985
      Kevin Schaefer
      Keymaster

      Hey everyone! Hope you’re all doing well.

      Check out Michael Casten’s latest column here. He wrote about celebrating his daughter’s golden birthday. Though it was different this year in light of the stay-at-home guidelines, his family still had a good time. Ella had socially distanced visits with friends, a family dinner, s’mores, and presents. It’s cool to read about how creative they were.

      Has anyone else done birthday celebrations for your kids during lockdown? What activities did you do? 

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