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    Planes, Trains, & Accessible Travel With SMA

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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 5 replies, has 3 voices, and was last updated by  Ryan Berhar 1 month, 1 week ago.

    • Author
      Posts
    • #18520
       Kevin Schaefer 
      Keymaster

      Hey everyone, here’s Michael’s latest column: https://smanewstoday.com/2019/04/24/sleepover-independence-friendship/.

      This column reminded me of how excited I was to have sleepovers when I was a kid. There’s nothing like having a friend over, and feeling just like everyone else. I’m glad Michael told this story, and I like how he provides regular updates about Ella’s adventures and social experiences.

      Do you have any takeaways from this column? Do you have any questions?

    • #18551
       Ryan Berhar 
      Keymaster

      Very cool. I didn’t really do sleepovers, because obviously they’d have to be at my house, and I didn’t want my friends seeing all my machines and what not that I use during the night. This column didn’t really cover any of that. Maybe Ella doesn’t need much in that regard?

      • #19768
         Kevin Schaefer 
        Keymaster

        I get that it can be awkward, but it’s just one of those things you deal with. My friends help me with a lot of other things, and they know my needs. It doesn’t really bother me if they see me with my BiPAP and other equipment.

        • #19775
           Ryan Berhar 
          Keymaster

          That’s more so the case for me now, but I was way more paranoid about that stuff when I was younger. Sleepovers were never really something I desired to do anyway, as it is just sleeping after all.

    • #19760
       Krystal 
      Participant

      I enjoyed this post. It gives me a lot of hope for my daughter in that there will definitely be things that she will be able to enjoy, “just like any other kid.”

      • #19764
         Kevin Schaefer 
        Keymaster

        Absolutely! I think that as she grows up, you’ll be amazed by all the things she can do.

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