• Sponsored Post

    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 5 replies, 3 voices, and was last updated 4 months, 4 weeks ago by Ryan Berhar.

    • Author
      Posts
      • #18520
        Kevin Schaefer
        Keymaster

        Hey everyone, here’s Michael’s latest column: https://smanewstoday.com/2019/04/24/sleepover-independence-friendship/.

        This column reminded me of how excited I was to have sleepovers when I was a kid. There’s nothing like having a friend over, and feeling just like everyone else. I’m glad Michael told this story, and I like how he provides regular updates about Ella’s adventures and social experiences.

        Do you have any takeaways from this column? Do you have any questions?

      • #18551
        Ryan Berhar
        Participant

        Very cool. I didn’t really do sleepovers, because obviously they’d have to be at my house, and I didn’t want my friends seeing all my machines and what not that I use during the night. This column didn’t really cover any of that. Maybe Ella doesn’t need much in that regard?

        • #19768
          Kevin Schaefer
          Keymaster

          I get that it can be awkward, but it’s just one of those things you deal with. My friends help me with a lot of other things, and they know my needs. It doesn’t really bother me if they see me with my BiPAP and other equipment.

          • #19775
            Ryan Berhar
            Participant

            That’s more so the case for me now, but I was way more paranoid about that stuff when I was younger. Sleepovers were never really something I desired to do anyway, as it is just sleeping after all.

      • #19760
        Krystal
        Participant

        I enjoyed this post. It gives me a lot of hope for my daughter in that there will definitely be things that she will be able to enjoy, “just like any other kid.”

        • #19764
          Kevin Schaefer
          Keymaster

          Absolutely! I think that as she grows up, you’ll be amazed by all the things she can do.

    Viewing 2 reply threads
    • You must be logged in to reply to this topic.

    ©2019 KLEO Template a premium and multipurpose theme from Seventh Queen

    CONTACT US

    We're not around right now. But you can send us an email and we'll get back to you, asap.

    Sending
    or

    Log in with your credentials

    or    

    Forgot your details?

    or

    Create Account

    Copyright © 2017-2019 All rights reserved.