• Sponsored Post

    Planes, Trains, & Accessible Travel With SMA

    Talk to your doctor to determine if you or your child is fit to travel.

    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  DeAnn R 9 months, 3 weeks ago.

    • Author
      Posts
    • #14899
       Kevin Schaefer 
      Keymaster

      In Michael Morale’s personal YouTube channel smajourney51, he did a video this week about preparing for injection days. He does things like avoiding foods with a lot of sugar and salt, limiting contact with people so as to avoid colds and drinking plenty of liquids.

      I’ll be honest, I don’t do much preparation other than drinking a lot of liquids the day before an injection. I barely even remember when my injections are, so I definitely don’t prepare weeks in advance or anything. I’m also too much of a people person to hibernate for long periods of time. But props to Michael for doing quality preparation and ensuring that he’s ready for injection days both mentally and physically.

      For those of you who are on Spinraza, do you do anything to prepare for your injections?

    • #15246
       DeAnn R 
      Keymaster

      Honestly I don’t do anything special to prepare for injection day.  I’ve heard all the advice like to hydrate and stay caffeinated to prevent spinal headaches, but didn’t learn this until well after my first injection.  Since I didn’t have an issue I didn’t see the need to adjust my routine.  Six in, they’ve gone smoothly, fingers crossed that will continue.  It’s all good preparation advice, but always take into consideration your body, how you get injections and your doctors instructions.

    You must be logged in to reply to this topic.

  • Videos

  • ©2019 KLEO Template a premium and multipurpose theme from Seventh Queen

    CONTACT US

    We're not around right now. But you can send us an email and we'll get back to you, asap.

    Sending
    or

    Log in with your credentials

    or    

    Forgot your details?

    or

    Create Account

    Copyright © 2017-2019 All rights reserved.