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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 0 replies, has 1 voice, and was last updated by  Kevin Schaefer 1 year, 3 months ago.

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    • #11906
       Kevin Schaefer 
      Keymaster

      Yesterday I went in for my first maintenance dose (so my fifth injection). Overall it went well, though it did take a little more time than the previous injections.

      The most time-consuming part was getting the needle in the right place. In this scenario, a millimeter makes all the difference. It took several tries for the doctors to get the little thing in just the right spot for the injection. During this, I pretty much just closed my eyes and daydreamed. It wasn’t super painful or anything, just annoying.

      Then by the time my neurologist put the medicine in it was over before I knew it. I rested in the hospital for about an hour, and was then let home. After eating a late lunch I just took it easy in bed the rest of the day. I also drank a lot of soda to reduce my chances of a spinal headache. Praise the Lord I have yet to deal with that nightmare.

      Overall I have no complaints. The injections have gone smooth so far, and even if the effects of the drug are small I’ll take them. Feel free to ask me questions about the process, the effects I’ve seen, etc.

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