SMA News Forums Forums Our Community Adults ​With​ ​SMA Reflecting On The Diversity of the SMA Community

  • ryan-berhar

    August 14, 2019 at 5:47 pm

    It is quite interesting how differently everyone is affected. Every little thing varies from person to person. Even things that aren’t as noticeable like chewing and swallowing.

    • kevin-schaefer

      August 15, 2019 at 12:50 pm

      It fascinates me. On that note of chewing and swallowing, that’s one thing I’ve never really struggled with. But I know many people in the SMA community who do struggle in this area. It’s interesting.

  • halsey-blocher

    August 14, 2019 at 9:49 pm

    “We may have the same neuromuscular condition as it’s described in medical journals, but the way that SMA affects us varies significantly from person to person.” This is true on so many levels! While we all live with the same condition and can relate to each other in ways that others just can’t, our individual stories and experiences are all completely unique! Even in extremely similar situations, we never fully experience things the same way.

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