Has anyone experienced nighttime restlessness on Evrysdi? It’s not that I can’t sleep — I just can’t get settled and inevitably always trigger a pressure point. It started a few days after my first dose so I’m wondering if it’s related.
I recall some of what you are experiencing when I started Evrysdi. I no longer have those feelings. I believe each person’s body learns to accept Evrysdi. For me, it was mainly my bowels. Now (8 months later) my body has adjusted nicely and I rarely have problems. I’m one who doesn’t like taking any forms of medication, so I sometime take a small amount of wine or other alcohol drink before bedtime, which helps me fall asleep easier. Good luck and I hope it gets better for you!
There were a few nights when I remember having a bit of that in my legs but it passed fairly quickly. I am similar to Kip in that my side effects were mostly GI-related, It has been over 3 months and it has gotten somewhat better and I’ve tried to manage it with diet. Hope you start adjusting!
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