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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 1 reply, 1 voice, and was last updated 5 months, 2 weeks ago by Kevin Schaefer.

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    • #22457
      DeAnn R
      Keymaster

      Hey everyone! Hope you’re all having a great week so far. Check out my latest video here.

      Always on the lookout for tools to make life easier, I decided to try out the Robotwist product that I’ve heard good things about. It’s a battery operated jar opener. Looking back, I don’t think I’ve ever been able to open a jar. Because of my physical limitations, I was skeptical it would work, but thought it was worth a shot. 

      Unfortunately, it was a bust. It’s frustrating because I was so close to getting it. Although I’m glad I tried it, it’s definitely not worth the effort, and wouldn’t be as beneficial as I had originally hoped. 

      Are there any products you love?  Any you want me to review? Let me know!

    • #22470
      Kevin Schaefer
      Keymaster

      It’s a shame they made the button so hard to press. Modifying that would have made it a lot more effective.

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