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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 5 replies, 3 voices, and was last updated 10 months, 2 weeks ago by Ryan Berhar.

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    • #20729
      Ryan Berhar
      Member

      Hey everyone! Hope you’re all having a great week.

      Check out the latest episode of Ryan’s Robotics here. I talk about the Dynamic Arm Support, which is another device that Kinova Robotics makes. A Kinova rep spoke with me, and did a full demonstration of this device. It’s something that a lot of people here might find useful.

      Hope you all enjoy this video! If you haven’t already, please subscribe to the SMA News Today YouTube channel. We’d greatly appreciate it.

      Do you have any questions about the Kinova arm support?

    • #20745
      DeAnn R
      Keymaster

      Thanks for the video Ryan. I was able to demo this a couple days ago. Unfortunately it did not work for me. Although it allowed me to move my arm up and down the device actually inhibited my outward reach. I did not have the strength to reach out against the device holding my arm. Despite my disappointment, I encourage others interested to give it a try. Just go into it knowing you may need more of your own arm movement for it to be effective.

    • #20753
      Kevin Schaefer
      Keymaster

      This is great! It’s good to see that there are other options for people who may not be physically limited enough to need a JACO, but who still need support. DeAnn, have you tried a JACO?

      • #20796
        DeAnn R
        Keymaster

        The gentleman from Kinova brought the JACO with, but we ran out of time to demo it. I’m still not sure it’s the right device for me anyway.

        • #20799
          Ryan Berhar
          Member

          I’d definitely suggest trying it out.

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