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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 5 replies, 3 voices, and was last updated 2 months, 1 week ago by Ryan Berhar.

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      • #20729
        Ryan Berhar
        Participant

        Hey everyone! Hope you’re all having a great week.

        Check out the latest episode of Ryan’s Robotics here. I talk about the Dynamic Arm Support, which is another device that Kinova Robotics makes. A Kinova rep spoke with me, and did a full demonstration of this device. It’s something that a lot of people here might find useful.

        Hope you all enjoy this video! If you haven’t already, please subscribe to the SMA News Today YouTube channel. We’d greatly appreciate it.

        Do you have any questions about the Kinova arm support?

      • #20745
        DeAnn R
        Keymaster

        Thanks for the video Ryan. I was able to demo this a couple days ago. Unfortunately it did not work for me. Although it allowed me to move my arm up and down the device actually inhibited my outward reach. I did not have the strength to reach out against the device holding my arm. Despite my disappointment, I encourage others interested to give it a try. Just go into it knowing you may need more of your own arm movement for it to be effective.

      • #20753
        Kevin Schaefer
        Keymaster

        This is great! It’s good to see that there are other options for people who may not be physically limited enough to need a JACO, but who still need support. DeAnn, have you tried a JACO?

        • #20796
          DeAnn R
          Keymaster

          The gentleman from Kinova brought the JACO with, but we ran out of time to demo it. I’m still not sure it’s the right device for me anyway.

          • #20799
            Ryan Berhar
            Participant

            I’d definitely suggest trying it out.

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