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This topic has 5 replies, 3 voices, and was last updated 2 years, 5 months ago by Halsey Blocher.

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    • #15775
      DeAnn R
      Keymaster

      I just came across this link on Facebook.  It’s an organization providing Secret Santa gifts to individuals who have SMA when they’re nominated by friends, family or someone else.  It’s meant to help with obtaining their “dream” gift secretly to surprise them.  Something worth checking out if there’s something you know is on the list for a friend or family member with SMA.  http://www.adynsdream.org/secretsanta

    • #15776
      Kevin Schaefer
      Keymaster

      Yeah, that’s a great organization. I know the family through Cure SMA, and I had Adyn’s Dad Brian on the podcast a few months ago: https://m.soundcloud.com/sma-news-today/sma-news-today-podcast-5-interview-with-sma-parent-adyns-dream-founder-brian-bucher

       

    • #15818
      Halsey Blocher
      Participant

      I’ve been friends with Adyn and her family for a long time, and I love how well their organization is doing! The secret Santa was a big hit last year!

      • #15819
        Kevin Schaefer
        Keymaster

        That’s awesome! Yeah they helped organize a live concert at this year’s Cure SMA conference in Dallas.

        • #15839
          Halsey Blocher
          Participant

          I didn’t go to the Dallas conference, but I heard the concert was great!

      • #15829
        DeAnn R
        Keymaster

        It’s great they can do so much for the SMA community.

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