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Secret Santa Opportunity
I just came across this link on Facebook. It’s an organization providing Secret Santa gifts to individuals who have SMA when they’re nominated by friends, family or someone else. It’s meant to help with obtaining their “dream” gift secretly to surprise them. Something worth checking out if there’s something you know is on the list for a friend or family member with SMA. http://www.adynsdream.org/secretsanta
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5 Replies
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Yeah, that’s a great organization. I know the family through Cure SMA, and I had Adyn’s Dad Brian on the podcast a few months ago: https://m.soundcloud.com/sma-news-today/sma-news-today-podcast-5-interview-with-sma-parent-adyns-dream-founder-brian-bucher
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I’ve been friends with Adyn and her family for a long time, and I love how well their organization is doing! The secret Santa was a big hit last year!
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That’s awesome! Yeah they helped organize a live concert at this year’s Cure SMA conference in Dallas.
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I didn’t go to the Dallas conference, but I heard the concert was great!
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It’s great they can do so much for the SMA community.
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