SMA COVID cases?
I’m new to the board, and I’m sorry if my first post is a bit morbid.
I’m in my 40’s and have SMA type 2. Like many of you, I’ve spent the past year hiding from this virus. I’ve been wondering how people with SMA, particularly adults in my category, are doing in terms of catching and surviving the virus. I’m obviously scared to death of it because I just barely made it through a bad case of pneumonia about 5 years ago. I’m just curious at this point, after a year, how the “numbers” are for us.
Are you all aware of older SMA adults like myself who have been exposed and passed away? Survived?
Also, I saw that MDA had written a letter to the CDC requesting that neuromuscular diseases be included in the phase I co-morbidity list for the vaccine, but nobody has any information on a response. I’ve so far not been able to get a vaccination appointment. Are we an “underling condition” or not? Frustrating.