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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 0 replies, 1 voice, and was last updated 2 years ago by Kevin Schaefer.

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      Kevin Schaefer
      Keymaster

      In the latest episode of the SMA News Today Podcast, I interview Ann Heathcote, a student at Madison College who has SMA Type II.

      During this interview, we talk about Ann’s diagnosis and growing up with SMA, her involvement in the Muscular Dystrophy Association (MDA), her college experiences, daily life and Spinraza treatments. Ann also shares some advice for other college students with SMA, and for people with disabilities in general.

      Give this episode a listen, and be sure to subscribe to the SMA News Today Podcast. All episodes are available on SoundCloud, iTunes, Podbean and here on our website at http://www.smanewstoday.com.

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