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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

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        Kevin Schaefer
        Keymaster

        In the latest episode of the SMA News Today Podcast, I interview Ann Heathcote, a student at Madison College who has SMA Type II.

        During this interview, we talk about Ann’s diagnosis and growing up with SMA, her involvement in the Muscular Dystrophy Association (MDA), her college experiences, daily life and Spinraza treatments. Ann also shares some advice for other college students with SMA, and for people with disabilities in general.

        Give this episode a listen, and be sure to subscribe to the SMA News Today Podcast. All episodes are available on SoundCloud, iTunes, Podbean and here on our website at http://www.smanewstoday.com.

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