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This topic has 1 reply, 1 voice, and was last updated 1 month, 2 weeks ago by Zicari.

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    • #25729
      DeAnn R
      Keymaster

      Hey everyone! It’s amazing to think of how far we’ve come in regards to treatments for SMA within the past few years. In this video I thought I’d give you an overview of the available treatments from my perspective. Currently three are FDA approved including Spinraza, Zolgensma and Evrysdi. I’ll let you know how they work and compare costs. Knowing your options is important when you’re considering starting or switching treatments. If you have any questions please ask. I’m not a medical professional, but will do my best to answer them.

    • #25738
      Zicari
      Participant

      Thanks for a great summary of treatments, I’ve been looking for something like this!

      A few years ago I opted out of getting Spinraza because one of my fusion rods was blocking the injection site and they said they would have to drill a hole in my spine. I said no thanks.

      I’ll be consulting my neurologist soon about Evresdi. I’d like to see its efficacy in older adults.

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