Viewing 1 reply thread
  • Author
    • #20458
      Michael Morale

      In this episode of the Morale Monologue, I’m sharing some information that was recently announced during the Cure SMA webinar, that was held on Wednesday, August 28, 2019. In this webinar, Cure SMA had representatives from AveXis Pharmaceuticals and the FDA. They discussed the most recent information regarding Zolgensma, along with information regarding the possibility of it becoming available to those of us that are adults.

      STRONG (NCT03381729) in SMA Type 2 children 6 months to 5 years

      REACH (NCT04042025) Possibly for adults up to 60 years

          * Est. Study Start Date:  09/01/2019

          * Est. Primary Completion Date:  12/31/2034

          * Est. Study Completion Date:  12/31/2034

      NOTE: The completion dates are for the conclusion of the REACH trial to end, but it may be available for SMA patients in 2022 or 2023

      For More Information:

    • #20466
      DeAnn R

      Interesting info!

Viewing 1 reply thread
  • You must be logged in to reply to this topic.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen


We're not around right now. But you can send us an email and we'll get back to you, asap.


Log in with your credentials


Forgot your details?

Create Account

Verify you are not a robot