• Adults ​With​ ​SMA

  The SMA News Today Podcast Episode 41: Roundtable Discussion September 2019

  Posted by kevin-schaefer on September 3, 2019 at 8:00 am

  Hey everyone! Hope everyone in the U.S. and Canada enjoyed the long weekend.

  Check out the latest episode of the SMA News Today Podcast here. In this roundtable discussion, Michael and I talk about a recent webinar that Cure SMA did on AveXis’ gene therapy Zolgensma. This webinar provided updates on the drug and its availability, and Michael and I share our thoughts.

  Then in part two, we discuss a couple of recent columns from our main site. One is mine about the diversity in the SMA community, and how it relates to the 31 Days of SMA project we recently did. The other is Alyssa Silva’s recent column about the logistics of planning a weekend getaway with friends.

  We discuss both of these columns, and some of our favorite stories from 31 Days of SMA.

  Hope you all enjoy this episode! Let us know your thoughts, and be sure to subscribe to the podcast if you haven’t already. We’d love to get your feedback. Thanks everyone.

  kevin-schaefer replied 5 years, 1 month ago 1 Member · 0 Replies

  • 31 days of SMA
  • Adults With SMA
  • avexis
  • Embracing My Inner Alien
  • Life One Cup at a Time
  • Novartis
  • research
  • SMA Awareness Month
  • SMA News Today Podcast
  • zolgensma
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