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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.


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      • #19401
        Kevin Schaefer
        Keymaster

        Good morning everyone! I hope you all are having a great week so far.

        Check out latest episode of the SMA News Today Podcast here. In this episode, Michael and I talk in-depth about the FDA-approval of Zolgensma. We discuss topics like: the differences between Zolgensma and Spinraza, the potential of other treatments for SMA, and how Zolgensma could affect newborn screenings. For more information regarding this drug, read this series of news articles on our main site. We also talk about some of our recent columns and forum posts.

        I hope you all enjoy this episode, and I’d love to hear your thoughts in the comments section. If you haven’t already, please subscribe to the podcast here.

        Thanks for listening!

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