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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 0 replies, 1 voice, and was last updated 1 year, 1 month ago by Kevin Schaefer.

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    • #19401
      Kevin Schaefer

      Good morning everyone! I hope you all are having a great week so far.

      Check out latest episode of the SMA News Today Podcast here. In this episode, Michael and I talk in-depth about the FDA-approval of Zolgensma. We discuss topics like: the differences between Zolgensma and Spinraza, the potential of other treatments for SMA, and how Zolgensma could affect newborn screenings. For more information regarding this drug, read this series of news articles on our main site. We also talk about some of our recent columns and forum posts.

      I hope you all enjoy this episode, and I’d love to hear your thoughts in the comments section. If you haven’t already, please subscribe to the podcast here.

      Thanks for listening!

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