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    Adapting to Life Outside Our Home With SMA

    I once heard a joke that a woman’s mind is like an Internet browser that has 1000 tabs open and running at once. I laughed at the time, but came to realize that if I didn’t actually feel like this before hearing the short acronym “SMA,” I most certainly do now.

    I spend much of my time pre-planning and thinking of possible problems that we may run into because of the kids’ diagnoses. I think many other SMA parents do this as well. Prior to our lives with SMA, we didn’t realize just how inaccessible the world is to those who are differently-abled.

  • This topic has 2 replies, 2 voices, and was last updated 1 month, 1 week ago by Halsey Blocher.

    • Author
      • #21592
        DeAnn R

        What’s the incubation period for a cold? Mom texted me Thanksgiving morning, “I’ve had a scratchy throat that’s turning into a cold.” Great. Being that she prepared most of the food I’m less than thrilled. Not to mention she’d be my main caregiver for those few days. By the time I got there she had a full blown cold. Fingers crossed I miraculously avoided it, but it always makes me nervous. That’s why when I read Kala’s most recent column it hit home. When I do get sick I’m constantly questioning if I can fight it on my own. I too hate having to go to the hospital. But, you gotta do what you gotta do. How are you faring this cold & flu season?

      • #21603
        Alyssa Silva

        Kala’s column resonated with me as well. Ugh. I’m not a fan of this time of year in that respect. Personally, I’ve found that if I’m not sick within 48 hours, I’m safe. If I know they are sick ahead of time, I wait 7-10 days from their earliest symptoms before seeing them again.

      • #21612
        Halsey Blocher

        Fortunately, I’ve been healthy so far this. Like Kala, I usually speak to my doctor over the phone and they choose an antibiotic (if it’s needed) based on what I or my mom tells them is going on. This has been a good system for us. It means I can stay home where it’s warm and there aren’t a bunch sick people who give me something worse. My doctors all know how easily I get sick so try to avoid making me come to the office, and I avoid the hospital like it’s the plague.

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