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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


This topic has 2 replies, 2 voices, and was last updated 8 months ago by Halsey Blocher.

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    • #21592
      DeAnn R
      Keymaster

      What’s the incubation period for a cold? Mom texted me Thanksgiving morning, “I’ve had a scratchy throat that’s turning into a cold.” Great. Being that she prepared most of the food I’m less than thrilled. Not to mention she’d be my main caregiver for those few days. By the time I got there she had a full blown cold. Fingers crossed I miraculously avoided it, but it always makes me nervous. That’s why when I read Kala’s most recent column it hit home. When I do get sick I’m constantly questioning if I can fight it on my own. I too hate having to go to the hospital. But, you gotta do what you gotta do. How are you faring this cold & flu season?

    • #21603
      Alyssa Silva
      Keymaster

      Kala’s column resonated with me as well. Ugh. I’m not a fan of this time of year in that respect. Personally, I’ve found that if I’m not sick within 48 hours, I’m safe. If I know they are sick ahead of time, I wait 7-10 days from their earliest symptoms before seeing them again.

    • #21612
      Halsey Blocher
      Participant

      Fortunately, I’ve been healthy so far this. Like Kala, I usually speak to my doctor over the phone and they choose an antibiotic (if it’s needed) based on what I or my mom tells them is going on. This has been a good system for us. It means I can stay home where it’s warm and there aren’t a bunch sick people who give me something worse. My doctors all know how easily I get sick so try to avoid making me come to the office, and I avoid the hospital like it’s the plague.

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