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This topic has 0 replies, 1 voice, and was last updated 2 years, 1 month ago by Kevin Schaefer.

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    • #17478
      Kevin Schaefer

      Hey everyone, hope you’re all having a great week!

      So today is officially recognized as rare disease day. You can learn more about it and this year’s theme here: https://www.rarediseaseday.org/page/news/theme-2019.

      Rare Disease Day provides us a great opportunity to raise awareness about SMA, and to educate people about what it’s like to live with a disability. I just want to encourage everyone to read about this organization, and maybe be encouraged to share your story.

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