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Traveling for Spinraza Injections
I’m fortunate that I only have to travel 30 minutes to the hospital for my injections, but I’ve talked to many other folks with SMA and families who travel hours or to other states for theirs. For some, their kids started the treatment while it was still in the clinical trial stage, and as such they have to travel to a hospital in another state. Others just don’t have any good options where they live, and as such go to a good hospital several hours away.
For those of you who do travel for injections, how much preparation is required? What’s your process like? Do you stay overnight at the hospital?
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