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    • #17966
      Ryan Berhar

      I’m still fighting off pneumonia. To treat it, I did treatment cycles every four hours of Albuterol nebs, the Vest machine, postural drainage, and the cough machine. Doing the treatments in this order seems to work best, as it breaks stuff up and then gets rid of it. Do you guys have the same system? Or do you have other machines, methods etcetera?

    • #17968
      Halsey Blocher

      That’s pretty much what I do except I use the nebulizer and vest at the same time, and I use xoponex (which I probably spelled wrong) instead of albuterol. Albuterol tends to make my heart race.

    • #17970
      DeAnn R

      Sounds like you’re doing everything right. Pneumonia is a bugger to recover from. Just keep at it.

    • #18003
      Kelly Miller

      Oh no, Ryan I hope you get better very soon! In the past, all I’ve used has been the nebulizer with albuterol, chest percussion by my husband, & assistance coughing by his pushing my diaphragm. Recently I got a cough assist machine which I will use next time I get sick.

      Ryan, have you heard of taking liquid albuterol on a daily basis? I started doing it last summer, and I feel way better in my breathing. I can breathe deeper, and it’s not so hard to cough if I need to. If you haven’t tried it will, give the idea some thought & talk to your pulmonologist. Mine had never heard of it being used on a regular basis & never heard that it did anything for anyone, but she was willing to let me try. She’s not sure it isn’t in my head, but she says whatever works is fine with her!

      • #18009
        Ryan Berhar

        Thanks. That’s interesting. I’ll look into it.

    • #18013
      Adnan Hafizovic

      I’m lucky I was suffering from pneumonia only twice in my life when I was a child. Although this winter I had twice a slight throat inflammation, but it’s nothing compared to pneumonia, which takes the lives of many people with SMA.

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