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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”


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      Brianna Albers
      Keymaster

      Happy Friday! Wanted to update y’all on my afternoon nausea. I think I’ve determined it was the matcha—I did a little research and discovered that, depending on your tolerance to green tea, you might struggle with diarrhea, dehydration, and other GI issues. I haven’t been feeling well for weeks, so I decided to go off the matcha for a while to see if it would help. And it did! I’m feeling much better.

      With matcha out of the running, I decided to try a couple of clean energy drinks. I’m currently experimenting with Zevia, and am waiting on my EBOOST order. I’ll keep y’all in the loop!

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