Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
Hey everyone! Hope you’re all having a great weekend.
I wanted to let you all know that Cure SMA is hosting a virtual conference this week, since they had to cancel their in-person one this year. You can find all the details for workshops, dates, and times here. You’ll need to register for each session individually. Feel free to contact Cure SMA with any questions.
Specifically, I wanted to invite you all to the adults with SMA socials. These will take place Monday, Tuesday, and Wednesday this week, each night from 7-9 pm CT. I won’t post the link here, but you should have received an email if you’re on Cure SMA’s mailing list. If you haven’t received anything, please send a message to this address: [email protected]
I’ll be one of the moderators each night, along with several other adults with SMA. It’ll be a great time to connect and hangout with other people in the community, much like we do at in-person conferences. Also, we want to make each session a little different, so it won’t just be the same thing every night.
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.