Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
I see we have some new members here, and I just wanted to welcome you all. I’m Kevin Schaefer, and I moderate the forums alongside DeAnn Runge and Ryan Berhar. Columnist Brianna Albers is also a regular contributor, and our site’s Multichannel Content Director Michael Morale oversees everything. All of us are adults with SMA.
Please let us know if you have any questions, ideas, or general feedback. We would love to hear from you! Also, this article here explains the technical components of using the forums. If you still have any issues, just let me or one of the other moderators know.
Thanks everyone, and have a great weekend!
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FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
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