Forum Replies Created

  • julia-ayerbe

    Member
    April 5, 2022 at 2:58 am in reply to: Accessibility for IPhone

    Thank you for all this tips! I will try and let you know. Hugs 🙂

  • julia-ayerbe

    Member
    February 8, 2021 at 1:04 pm in reply to: First dosis of Spinraza

    Thank you all for your words, they help me a lot. Since today I no longer feel the side effects of the injection and I am very happy and peacefull to continue on this journey. 🙂

  • julia-ayerbe

    Member
    January 6, 2021 at 4:21 pm in reply to: Hello!

    Hi Flavio, I´m type III, also from Brazil, but I live in Spain.

  • julia-ayerbe

    Member
    September 7, 2020 at 5:05 pm in reply to: Drinking celery juice

    Hi Alyssa, I use to drink green juices every morning, with spinach, celery, carrots, apple. I also have constipation problems, and I think it helps, and also not eating too much gluten. Anyway, constipation is a hard issue… but I think the juices are a good ally.

  • julia-ayerbe

    Member
    July 1, 2020 at 5:07 am in reply to: Spasms and cramps

    Hi Alyssa, thank you for your reply :). I think you are right, I´ve been more carefull about my hydration and I didn´t have any spasm or cramp in the last days, thank you for the advice! Anyway, it will be nice to understand more, why these spasms os cramps are frequently in the abdomen area (sometimes happens when I am laughing, or when I make other movement with these muscles). And, what do you mean by IBS? Sorry, I am not an English native speaker.

  • julia-ayerbe

    Member
    June 5, 2020 at 8:43 am in reply to: SMA Patients of Color?

    Hi Brianna,

    There is Jillian Mercado, I don´t know if you already known her 🙂 https://www.instagram.com/jillianmercado/

  • julia-ayerbe

    Member
    March 14, 2018 at 6:28 am in reply to: Intoduction

    Hi Mike, very happy to hear from you! I am curious about your treatment with Spiranza, since I am SMA III too.

  • julia-ayerbe

    Member
    August 21, 2021 at 7:09 am in reply to: side efects after three weeks

    Hi DeAnn, thanks for your answer :). I am trying to not take a pain reliever, but if it gets worth I will. Maybe it is another thing, sometimes when you have a disease like SMA, everything that happens with your body, you connect with it…