SMA News Today Podcast Episode 1: An Interview With Christine Getman

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SMA News Today is proud to present the first episode of our new podcast. This is a monthly podcast in which Community Editor Kevin Schaefer will interview a variety of individuals who have SMA.

In this episode, Christine Getman shares her story and discusses her work with the nonprofit organization Magic Wheelchair. Magic Wheelchair develops customized costumes for children in wheelchairs, and reaches families across the world. Its founders Ryan and Lana Weimer are parents to three SMA children, and their mission is to make every kid feel epic on Halloween, at comic cons and any other event where they can dress up.

MORE: Five tips for supporting a friend or family member with SMA

In addition to her work with this organization, Getman is also a huge SMA advocate. She recently spoke at the Patient Focused Drug Development conference in Maryland, and has been involved with Cure SMA for years. In this interview she talks about her work, disability advocacy, Spinraza and her daily life.

Be sure to follow the SMA News Today podcast here on SoundCloud, as well as other audio content which is posted every week.

MORE: Four must-read books written by SMA authors

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Kevin Schaefer is a writer from Cary, North Carolina with SMA Type II. He studied English at NC State University with concentrations in film studies and creative writing, and since graduating he’s been focused on freelance journalism as well as writing comic book scripts. When he’s not writing or consuming excessive amounts of comic books and movies, he enjoys spending time with family and friends and considers himself blessed that they put up with his ramblings. He is the youngest of three and lives with his parents and dog Pandora. The dog gets the most attention.

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Kevin Schaefer is a writer from Cary, North Carolina with SMA Type II. He studied English at NC State University with concentrations in film studies and creative writing, and since graduating he’s been focused on freelance journalism as well as writing comic book scripts. When he’s not writing or consuming excessive amounts of comic books and movies, he enjoys spending time with family and friends and considers himself blessed that they put up with his ramblings. He is the youngest of three and lives with his parents and dog Pandora. The dog gets the most attention.

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2 comments

  1. Michelle Devlin says:

    Hi I am hoping to connect with others that have SMA type4
    I would love to talk with them as I was diagnosed with type 4 sixteen years ago.
    Not sure if anyone can help me with this.

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