SMA Stories: From Loss to Hope

by Wendy Henderson | November 23, 2016

In this touching video from FightSMA, we meet the Kemp family. Having already suffered the sadness of losing their daughter Madisyn to Type 1 spinal muscular atrophy (SMA) in 2008, Brandon and Patti went on to have three more children.

Find out what the three main symptoms of spinal muscular atrophy are.

While daughters Bryanne and Ellery were given clean bills of health, their youngest daughter, Adalyn, was diagnosed with SMA at seven months old. However, the family is much more positive and hopeful this time around. Adalyn has been registered in a clinical trial and is already starting to show some improvement in movement and she can support her head much better. The Kemps are hopeful about their daughter’s future and are amazed at how far medical science has come in the decade since they lost Madisyn.

Find out about Reagan, a five-year-old SMA patient who is undergoing pioneering stem cell treatment.

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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About the Author

Wendy Henderson Wendy is a proven blogger and social media manager who has helped to build online communities for businesses and organizations. She currently heads the website’s social outreach online through social media platforms such as Facebook, Twitter, and Pinterest.