Somehow, it’s already been three years since I began sharing my story with you in this column. It’s been a beautiful, heartfelt adventure that I’ve thoroughly enjoyed. But I have to admit that when I invited you to pull up a chair back in 2019, I didn’t really…

Spring is a magical time of awakenings, a flagship season of gentle nudges and reminders from the natural world outside my window. Lately, I’ve felt like a honeybee, and I happened to be visited by one in the midst of enjoying springtime vibes the other day. Suddenly noticing the…

Humans like to believe that progress is linear. We were in the Dark Ages, then we weren’t. We were largely illiterate, then we read so much we created demand for the printing press. We didn’t have smartphones and international access to each other via the internet, and now…

The worst part about long-running sitcoms is when they hit so close to real life. This is especially true when everyone’s favorite characters leave. Think about when Michael left “The Office,” or when Chris and Ann left the town of Pawnee in “Parks and Recreation.” These moments hit…

About a decade ago, I woke to the sight of dozens of butterflies bathed in gentle light above my head. I wasn’t expecting that. When I lost consciousness, my mom and I had just arrived at the hospital in an ambulance after being rescued from our home by…

Let’s talk about the green-eyed elephant in the room. I’m a naturally jealous person. The therapist in me is convinced that my childhood has something to do with it — all those hours on the playground watching the kids on the monkey bars, wishing quietly for a body like…

Ella and I sat at Dunkin’ Donuts, conversing about MDA Camp. (MDA is the Muscular Dystrophy Association.) She thoroughly enjoyed camp for all the wonderful activities she did, and especially for the people she became friends with. The camp wasn’t all peaches and…

One of the consequences of having SMA is scoliosis. The increasing curvature of the spine contorts the body and compromises lung function. A thoracic-sacral-lumbar orthosis (TSLO) helps with supporting the body, but it doesn’t do anything to correct the curvature of the spine.