Nonambulatory young adults with spinal muscular atrophy (SMA) who have contractures  — when muscle and connective tissue around a joint become short and hardened — do not feel significantly hindered by these in their daily lives. Despite contractures in multiple joints, they do not perceive them as a constant…

Undergoing physical therapy nearly every day while on Spinraza (nusinersen) leads to significantly greater motor improvements than occasional sessions for children and adolescents with spinal muscular atrophy (SMA), a small study suggests. These benefits — detected in patients with SMA type 1, type 2, and type…

My body tensed, rigid as the blue therapy mat beneath my body. The physical therapist cradled my right leg, directing me to push my foot against his hand with all the might I could muster from the sleepy depths of my hamstrings.  Face scrunched and fists clenched,…

Children with spinal muscular atrophy (SMA) who have spine deformities or weak trunk muscles are more likely than others to have substantial limits to functional abilities and life activities, a study in patients ages 6 months to 15 years reported. Strengthening trunk muscles through regular exercise and physical therapy…

The Olympic Games in Tokyo are happening right now, which makes me think about how those of us with SMA are athletes in our own special way. How do we win against the opposing team of our symptoms? We must have high amounts of endurance, the will to overcome…

My daughter Ella was diagnosed with spinal muscular atrophy type 2 at 14 months old. Our doctor offered us the hope that although there wasn’t a treatment or cure at the time, there was equipment we could use and therapies we could engage her in to give…

By Michael Morale, Bionews Services’ Director of Multichannel Content Most people go to physical therapy because they’ve suffered an injury or are recovering from surgery. Previously, those of us with spinal muscular atrophy (SMA) were told not to do physical therapy because stressing our muscles to make them stronger…

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If someone had told me a few years ago that I would love going to physical therapy every week, I would have laughed. Let’s just say that the idea of letting other people stretch my arms and legs, contort my muscles into uncomfortable positions, and make me do…