SMA Awareness Month: Ideas for Raising Awareness

August is Spinal Muscular Atrophy (SMA) Awareness Month. To help spread the word about the disease and raise much-needed funds for research into treatments and therapies, Cure SMA has come up with a list of ideas to help you get started:

MORE: Caring for a child with SMA when they have a cold

  • Hold an awareness day with your local sports team
  • Reach out to local celebrities and politicians to ask for proclamations or statements
  • Reach out to local newspapers, and TV and radio stations
  • Become an advocate
  • Join your local Cure SMA chapter and volunteer
  • Host a fundraising event
  • Hold a group candle lighting to honor those who have lost their battle with the disease
  • Spread the word on social media

Throughout the month, Cure SMA will also be hosting a social media outreach campaign. The organization is asking people to post photographs on Facebook of someone who inspires them to raise awareness for SMA, or a picture of them taking part in a fundraising event using the hashtag #cureSMA or tag Cure SMA.

You can also update your profile picture for your social media accounts with a Cure SMA twibbon.

MORE: Seven pieces of respiratory equipment needed by a child with SMA

SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.


  1. Pamela K. Muhammad says:

    Great ideas,!! I’m interested in sharing testimonies and experiences of SMA Advocates on Facebook by starting a page to dialogue, share, treatments, inspirational stories! If you’re interested reply. Thank you!!

  2. Robert McIntyre says:

    I am looking for an SMA/LED patch for my grandson’s vest. He has a friend who has SMA with LED and he wanted to show his love and support to her by wearing it. Question is I have been everywhere looking for something and just can’t seem to find one, does anyone know of a place where I can get one?

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