This MediaStorm documentary is all about Philly Mayer. Philly is a bright and happy 9-year-old boy who was diagnosed with spinal muscular atrophy (SMA) as a toddler.
The Mayers realized something was wrong when Philly suddenly stopped walking in his baby walker just before his first birthday. A few weeks later, he refused to stand. After many tests, they learned that Philly had SMA. The Mayers were told their little boy would only live until he was seven, but at nine years old, he’s still going strong.
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
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