31 Days of SMA

Photo courtesy of Melissa Milinovich Day 30 of 31 This is Claudia Milinovich’s story: My mom is a normal mom. She taught me to walk and talk — stuff any normal parent would do. Yeah, she can’t walk…

Photo courtesy of Keith Schaper Day 29 of 31 This is Keith Schaper’s story: Our son, Oliver, was officially diagnosed with SMA type 2 at 14 months old on March 7, 2017. We discovered Cure SMA…

Photo courtesy of Autumn   Day 28 of 31 This is Autumn’s (@itsss.autumn.here) story: Hi! I’m Autumn. I was diagnosed with SMA at 13 months old. SMA is definitely a journey, an adventure: the machines to help me,…

Photo courtesy of Rachel O’Hagan Day 27 of 31 This is Rachel O’Hagan’s (@bravelikebeau) story: I am a special education teacher and have held the hands of several parents as they navigated a new diagnosis for their…

Photo courtesy of Carissa Decelles Day 26 of 31 This is Carissa Decelles’ (@rheelgirl) story: Hello! My name is Carissa, and I am a 30-year-old, award-winning art director and graphic designer from eastern Connecticut. I also happen…

Photo courtesy of Edmund Lim Day 25 of 31 This is Edmund Lim’s story: There were times, after my younger son was diagnosed with SMA type 1, that I was on the verge of resigning his life…

Photo courtesy of Michael Garcia Day 24 of 31 This is Michael Garcia’s (@teacher.mike72) story: I believe in miracles. I believe in God. I believe in his will both on earth and in heaven. Nearly two years…

Photo courtesy of Lana del Roll Day 23 of 31 This is Lana del Roll’s (@lanadelroll_official) story: If you have a disability, you are worth a closer look. Those who can see the real you will find…

Photo courtesy of LaMondré Pough Day 22 of 31 This is LaMondré Pough’s (lamondre_p) story: Everyone has a desire to be seen. When I say that, I’m not talking about a gratuitous need for attention, or someone…