Recently, I attended the 2019 Cure SMA Chapter and Leadership Conference in Boston.
Kevin Schaefer
Kevin Schaefer (he/him) is a writer, podcaster, and lover of all things pop culture. Diagnosed with SMA type 2 at the age of 18 months in 1995, he shares a vast array of hilarious and eye-opening stories from his life with a neuromuscular disability. He works as the associate director of community content for this site’s parent company, BioNews. He also hosts the SMA News Today Podcast. Kevin is a graduate of North Carolina State University and lives with his parents in Cary, NC. People regularly mistake him for Tony Stark, on account of his intellect and advanced technological equipment.
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Articles by Kevin Schaefer
It’s my favorite time of year. I love the fresh autumn breeze that brushes past my face every…
The auditorium filled up quickly for a Monday night. Everyone was bursting with excitement. I sat in the…
Fun fact: I’m a huge sucker for the coming-of-age genre. I voraciously consume memoirs like “…
My summer was a roller coaster of ups and downs. Amid all of my adventures and celebratory occasions,…
In 2017, writer Keah Brown created the hashtag #DisabledAndCute…
A few weeks ago, someone posted a question in a Facebook group for people living with neuromuscular conditions.
I remember it like it was yesterday. Every muscle in my body tensed up as I looked at…
Turn the Page Already!
For most people, lifting weights is a suitable form of physical exercise. For me, successfully turning just one…