One Day at a Time
At the time of this writing, I’m halfway through my Spinraza (nusinersen) loading doses. As I…
Articles by Kevin Schaefer
4 Tools to Help SMA Individuals Through the Winter
The winter can be a challenging time of the year for SMA individuals. Not only do cooler temperatures make it…
The Wonders of Water Therapy
We’ve all heard the saying that PT is short for “physical torture,” and for the longest time…
My First Spinraza Injection Was Like Something Out of a Comic Book
A few days ago, I found myself strapped to an operating table while a radiologist injected a…
This SMA Blogger Wants to Help Others Overcome Challenges
Blog Blogger Jon Morrow has made a name for himself over the years writing viral content…
SMA News Today Podcast Episode 2: An Interview With Author Ben Mattlin
In the second episode of the SMA News Today podcast, Community Editor Kevin Schaefer interviews author Ben Mattlin. Mattlin…
Stop Staring at My Service Dog
The other night, I was out at Barnes & Noble with my dad. As we went to grab…
Making Transfers Easier: The Molift Nomad Ceiling Hoist
Transferring an SMA individual in and out of their wheelchair can be a challenge, especially if you don’t have the…
Plenty to Do While Awaiting Spinraza
November is a pretty jam-packed month for me. I’m working on a book project for the annual…
Adaptive Vans for Wheelchair Users: The MV-1
https://www.facebook.com/mobilityventuresauto/photos/a.780866102002354.1073741829.775116349243996/1140472656041695/?type=3&theater In 2016, Mobility Ventures released the MV-1, which is the first van to be built specifically for wheelchair users.