The Cure SMA Conference Reminded Me of the Strength in Community
This year marked the second entirely virtual annual Cure SMA conference. Instead of…
Articles by Kevin Schaefer
Embracing the Outdoors and Venturing Into the Unknown
“It’s a dangerous business, Frodo, going out of your door. … You step into the Road, and if you don’t…
Staying on Top of Everything, or Just Getting By
One of my favorite films is “Rushmore,” a coming-of-age comedy from one of…
Help, My Caregiver’s Car Caught on Fire!
My life is a sitcom. Recently, I was chatting with my friend Young, a columnist for…
Like the Legendary Peter Jackson, I Stay True to Myself
Peter Jackson, the New Zealand filmmaker who spearheaded “The Lord of the Rings”…
Managing Chaos Lesson No. 4,491: A Friday Night Wheelchair Malfunction
My dad and I both heard the perfunctory snap as the right armrest on my power wheelchair lowered.
Thanks to the COVID-19 Vaccine, I’m Back Where I Belong
“Chewie, we’re home.” Just as Han Solo uttered these words when he stepped aboard the Millennium…
‘I’m Not Broken’: Examining How Disability Is Portrayed in ‘Zack Snyder’s Justice League’
On March 18, the gargantuan blockbuster of a superhero movie known as “Zack Snyder’s Justice…
Amid the Busyness of Life With SMA, I’m Learning to Embrace Stillness
In college, my sanctuary was the room where the majority of my classes took place. Tucked away in…
This Rare Disease Day, I’m Grateful for My Friends
You know it’s a unique relationship when one friend helps the other use the bathroom. This is the…