SMA Documentary: ‘A Thousand More’
This MediaStorm documentary is all about Philly Mayer. Philly is a bright and happy 9-year-old boy who was…
Articles by Wendy Henderson
Learning More About the Faulty Gene in SMA
https://www.youtube.com/watch?v=Fp7MQlZGpKI Approximately one in 10,000 newborns is affected by spinal muscular atrophy (SMA), a condition that results in muscle deterioration and impaired mobility.
6 of the Best Apps for Chronic Illness Management
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to…
7 Pieces of Respiratory Equipment Needed for a Child With SMA
Spinal muscular atrophy (SMA) is a genetic disease where, over time, the muscles become weakened. In cases of SMA type…
Adults With SMA: Hayleigh Barclay
This video from Muscular Dystrophy UK is all about Hayleigh Barclay. Hayleigh is a 27-year-old woman…
Caring for a Child With SMA When They Have a Cold
According to Cure SMA, there are several areas of care that need to be taken into consideration when…
Cure SMA Releases Care Booklet to Help With Nutritional Needs
Cure SMA has launched a series of care booklets covering a wide range of topics for…
SMA Stories: Meet Stella Bartlett
Stella Bartlett is a little girl from Toronto, who was diagnosed with type 2 spinal muscular atrophy when she…
‘Life and Atrophy’: A Documentary About a Young Boy’s Journey With Spinraza
Documentary filmmaker Gareth Burghes first heard of spinal muscular atrophy (SMA) through his father’s work as a geneticist. He…
‘Dare to Be Remarkable’: A Documentary About Life With SMA
This video from therhodeshow is all about Alyssa Silva, the star of a documentary about life with…